Multiple Sclerosis: My Solar Eclipse Relapse
Everyone was talking about the solar eclipse and I missed my chance to get free glasses from my library. I was bummed out. Like always my children kept me busy. That weekend I passed that weekend so tired and weak. I did not understand. I spent the Solar Eclipse getting steroids. 🙂 That was my Facebook post. Let me share why.
In late August right in time for the solar eclipse I went through a relapse. My left arm was numb and couldn’t keep my balance. By Sunday, I stay home resting and Monday I called my Neurologist to inform her my curreny state. I was asked to see her right away, which happen on the solar eclipse day.
I saw the doctor and she did the routine physical tests. For the first time I saw the use of the prickling of the needle. 🙂 I resulted with a exaberation that affected both my left arm and leg. That was a new symptom for me. She prescribed me a three day treatment of steroids.
During my time taking the IV steroid treatments, two key conversations happen. A heartfilled comment by my husband …”ever since you started taking the 50,000 units of vitamin D I noticed you started having these issues with your body”. I am so thankful for that comment. That was the comment that encouraged my literature review, to start reading and asking questions to the Neurologist about the studies on Vitamin D. I asked the doctor specifically if the patients in the study also took M.S. medications and if there were any studies done with M.S drug free patients. She mentioned she knew of a study on one patient that they tried the 100,000 units, but it never was published.
Overdose of vitamin D
After I shared with the doctor that I suffered a overdose of vitamin D, she didn’t agree and prescribed to me instead 35,000 units. So we do not agree on that assumption. That is ok with me. I know how I felt before I took the first dose of 55,000 units of Vitamin D. I know this is a common dose that many M.S. patients take, but it definitely worked different on me, a M.S. patient who doesn’t take multiple sclerosis treatments. This is definitely worth researching more on.
After three days IV of steroid treatment in order to stop the relapse. My body recovered from the first day off of the steroids with some bedrest. That means in my world I would get up. Make breakfast and then lie down, because I was exhausted. The next day I forced myself to get up and start moving again.
Through literature review I learned from others who recuperated from my type of exaberation recovered better by being active at least 20 minutes a day. This helped them recuperate and recover mobility while eating nutritious meals.
After the day of “rest” from taking steroids I found doing exercise helped me daily to gain strength and more mobility. It took meeting another person over breakfast to learn of a great physical therapist and wellness group, which I made a appointment with to see in a week.
Having still a week to go to the first physical therapy session, I decided to take to heart to build my strength and mobility. Each day I decided to do something different to build back my mobility. With my children I did exercise walking the first day. Over the week I danced at a free event, and walked backwards at a pool. To riding again the stationary bike for 15 minutes and then did weights. So I pretty much kept consistant to do an active exercise for 30 minutes each day until I went to the physical therapist. With the physical therapist I learned breathing, meditating techniques to help me relax and exercises to strengthen my core. I learned strengthening the core helps the balance, strength and walking. Two weeks from the incident of the exaberation I share I am almost back to normal My endurance and strength is the only part that need to gain back. Sincerely, I feel I will get it back with rest and practicing what I am learning from the therapist.
With all honesty my food choices was so much healthy especially while taking the steroids. I made sure I took double dose of Juice Plus chewables which consisted of 16 chewables per day and took a Complete Juice Plus Shake for proteins and vitamins from food. I ate salads, bean soup, vegetable soups and veggie burgers or baked fish. Potasium was the important vitamin to acquier while taking the steroids, so I drank Juice Plus smoothies with avocado, banana, peaches and mangoes smoothies.
The content I found on the Internet about the Vitamin D overdose said to completely stop taking the vitamin. I have also experienced in the past of accidentally over taking vitamin B and the neurologist at that time shared that I need to stop taking the vitamin for two weeks and clear out my system. After clearing out my system I pretty much started taking 1000 units for two days and then 5,000 units and plan to increase the dose gradually.
I learned in all this that I need to truly love myself and take care of my body. Doctor’s do make mistakes and I need to work with a doctor who can truly help me.
All the best always,